Preimplantation Genetic Testing: the Conflict between Reproductive Autonomy and Disability Rights. With the UK, Ireland, and Portugal as Case Studies.

dc.contributor.advisor Melo, Helena : Pereira de Keogh, Bríana 2023-08-07T11:11:44Z 2023-08-07T11:11:44Z 2022
dc.description Second semester University: New University of Lisbon.
dc.description.abstract Preimplantation genetic testing allows parents who are at risk of passing on a serious genetic disability or illness to avoid implanting embryos with genetic abnormalities when going through IVF. In the UK and Portugal, this is publicly funded and limited to ‘serious’ genetic abnormalities only, whereas in Ireland there are no national regulations. At first glance, selecting against genetic abnormalities is a justifiable aim in the name of public health and avoidance of human suffering. In addition to this, reproductive autonomy is an important bioethical principle and control over one’s private and family life is commonly recognised as essential for human flourishing within a liberal society. However, if we do not remember our history we may be doomed to repeat it. Objectively harmful eugenic policies of the 20th century advocated for the eradication of disability in order to improve the strength of humankind. This traumatic history continues to create fear amongst the disability community for the return of stigmatisation, discrimination and reduced funding for services. However, the reality is that raising a child with a disability correlates with economic, social and mental strains. Should we, therefore, set limits on an individual’s ability to avoid these strains, so we can protect human diversity and the rights of persons with disabilities? If we truly respect reproductive autonomy and the value of disability in our communities then why is it considered immoral to deliberately select an embryo with the gene for deafness? Whilst the majority of disability is attributed to non-genetic factors and therefore the eradication of disability is impossible, grave damage can still be done to our tolerance for human variation and the inherent human dignity regardless of one’s genetic constitution. Contains ableist language and remarks.
dc.description.sponsorship European Commission - Operating grant - Neighbourhood, Development and International Cooperation Instrument - Global Europe Instrument (NDICI)
dc.language.iso en
dc.publisher Global Campus of Human Rights
dc.relation.ispartofseries Global Campus Europe (EMA) awarded theses 2021/2022
dc.subject bioethics
dc.subject genetics
dc.subject reproductive rights
dc.subject dignity
dc.subject people with disabilities
dc.subject discrimination against people with disabilities
dc.subject Ireland
dc.subject Portugal
dc.subject United Kingdom
dc.subject case studies
dc.title Preimplantation Genetic Testing: the Conflict between Reproductive Autonomy and Disability Rights. With the UK, Ireland, and Portugal as Case Studies.
dc.type Thesis
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